Last night I dreamt that I was trying to get a hold of my nephrologist, and so I went to her office, but the building was all empty and locked up, and it was being repainted, and there was a "For Sale" sign in front of the building.
I tried to find someone to loan me their phone so I could phone her to find out what was going on, but then I couldn't find her phone number. I had it written down, but it was in a sort of code, and I had to figure it out, and I wasn't sure if I had it right. But there were all kinds of problems getting to use a phone, with all kinds of weird people and me being in their weird houses and then there were lots of collage materials I was trying to gather and then there were silverfish running around. Lots of silverfish. Blech.
I never did reach her.
ENOUGH WITH THE "TRYING TO PHONE SOMEONE TO HELP ME" DREAMS! DO YOU HEAR ME, SUBCONSCIOUS?
I emailed my nephrologist this morning & she's still been sick, but she's planning to be in the office tomorrow, so she has asked me to phone her to talk about the lab results from 2-3 weeks ago. I'm getting organized, so that I have all the relevant information at hand, in addition to my questions.
Questions for nephrologist (for phone convo 2/3/14)1. My blood sodium level has always been in the normal range, but my urine sodium level has been lower than normal (<30), including in our tests in August. What does this combination (normal blood sodium but low urine sodium) mean?
2. If my urine sodium hasn’t necessarily changed (since it was already low in August), why would the creatinine and GFR numbers have worsened in the intervening months, after getting better when I went off lithium? I’m eating fairly normally, and I've actually been drinking *less* water since I went off lithium in early July 2013.
3. If I am dehydrated because I’ve been drinking too much water compared to my sodium intake, should I be drinking less water or increasing my sodium intake? Or do you recommend some other course of action entirely?
4. Could diabetes inspidus be involved somehow? Back when I was taking lithium, it definitely seemed like I had it, but I don't know if it has gone away. I know my urine is still diluted, but my thirst has gradually declined in the months since the labs on August 8th.
5. What do we do now? Why have the numbers worsened? What can we do about it?
6. I think I should see a dietician once we understand what's going on. Can you refer me?
Lab Result Timeline (for phone convo with nephrologist 2/3/14)8/30/10: creatinine 1.19, eGFR 50, blood sodium 143
3/9/11: creatinine 1.25, eGFR 47, blood sodium 141
8/17/11: creatinine 1.24, eGFR 54, blood sodium 141
12/20/11: creatinine 1.26, eGFR 53, blood sodium 141
6/26/12: creatinine 1.23, eGFR 54, blood sodium 138
4/11/13: creatinine 1.53, eGFR 41, blood sodium 142
6/3/13: creatinine 1.41, eGFR 46, blood sodium 139
6/11/13: creatinine 1.65 (quite high), eGFR 38 (quite low), blood sodium 139 (normal)
* reduced lithium dosage *
6/21/13: creatinine 1.40, eGFR 46, blood sodium 138
* completely off lithium *
8/8/13: creatinine 1.33, eGFR 49, blood sodium 139, urine sodium <30 (low)
12/30/13: creatinine 1.57, eGFR 40, blood sodium 143
1/7/14: creatinine 1.60 (quite high), eGFR 39 (quite low), blood sodium 142 (normal)
1/15/14: urine creatinine 10.9 (low — what does this mean?), urine sodium <30 (low again)